by Erinsads | Feb 8, 2023 | Blog
In November 2022, we asked people to share their stories as they took our genetic testing survey – and we are so grateful for everyone who talked with us, wrote down their story, or left us a voicemail! Here are some of the stories shared by the SADS community....
by Erinsads | Jan 30, 2023 | Blog
Jason | Living with ARVC West Newbury, Massachusetts | Born July 1984 “I used to hike three or four peaks in a day and not really see what’s going on. Now, I spend more time smelling the flowers on a leisurely jaunt—looking...
by Erinsads | Jan 18, 2023 | Blog
Can you tell me a little bit about your SADS journey – from diagnosis to where you are today? It started when I had what they call Sudden Cardiac Death at a CrossFit gym. I was doing a workout with my 16 year old son, which sucked to have him witness. I remember...
by Erinsads | Jan 18, 2023 | Blog
Can you tell me a little bit about your SADS journey? I was diagnosed with Brugada Syndrome in 2019 and subsequently had an S-ICD implanted. My journey to my diagnosis, especially in regards to genetic testing is somewhat unique given that I am adopted and have no...
by Erinsads | Jan 18, 2023 | Blog
Can you tell me a little bit about your journey? I didn’t run at all growing up. It’s just something I developed an interest for later in life. I accomplished completing both half and full marathons plus I completed one ultra marathon. I was really getting into...
