by Erinsads | Sep 6, 2022 | Blog
Lizzie Name: Lizzie How and when were you diagnosed? I was diagnosed with ARVC in the middle of a career of ultramarathon running at the age of 31. I started to develop shortness of breath and weakness in my legs during my training runs, and not long after that I...
by Erinsads | Sep 2, 2022 | Blog
Sandy and her son, Jackson SADS billboard placed by Sandy in Binghamton, NY Sandy Cowin is on a mission to raise awareness about Brugada Syndrome – a rare genetic cardiac condition that affects the heart’s electrical system. She’s raised awareness through sharing her...
by Erinsads | Aug 25, 2022 | Blog
My story would probably best be described as a roller coaster, with lots of ups and downs. I grew up between two brothers, and we did everything together. We played from sunup to sundown – basketball, football and baseball, and we had a pool, so we swam...
by Erinsads | Aug 25, 2022 | Blog
Brian was a junior and on the dean’s honor list at the University of Wisconsin-Madison, studying biomedical engineering and computer science. He truly loved his college experience and formed an amazing second family away from home. We are comforted knowing he was the...
by Erinsads | May 21, 2022 | Blog
Can you tell me a little bit about your ARVC journey – from diagnosis to where you are today? I had my first symptoms years before my event. I did a VO2 test once, while I was doing triathlons, and a strange heart rate result came back – but because I was young and...
