Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
LQTS Awareness: Jack’s Story
Can you tell me a little bit about your SADS journey – from diagnosis to where you are today? I remember having episodes in early grade school. I...
SCA Awareness: Daniela’s Story
Can you tell me a little bit about your SADS journey – from diagnosis to where you are today? I was diagnosed with Long QT Syndrome Type 1 when I...
Julia’s Genetic Testing Story
Did you know that one important part of keeping your heart healthy this National Heart Month is by learning more about what’s in your genes? Take it...
Genetic Testing: Stories from the Community
In November 2022, we asked people to share their stories as they took our genetic testing survey - and we are so grateful for everyone who talked...
Jason | Living with ARVC
Jason | Living with ARVC West Newbury, Massachusetts | Born July 1984 “I used to hike three or four peaks...
ARVC Awareness: Jeff’s Story
Can you tell me a little bit about your SADS journey – from diagnosis to where you are today? It started when I had what they call Sudden Cardiac...
Brugada Awareness: Julia’s Story
Can you tell me a little bit about your SADS journey? I was diagnosed with Brugada Syndrome in 2019 and subsequently had an S-ICD implanted. My...
ARVC Awareness: Jason’s Story
Can you tell me a little bit about your journey? I didn't run at all growing up. It’s just something I developed an interest for later in life. I...
LQTS Awareness: Allison’s Story
Can you tell me a little bit about your SADS journey? I was diagnosed with Long QT Type 1 in 2018, following the birth of my twin daughters. About a...
Returning to Play: Ella and Dawn’s Story
Dawn didn’t know she had Long QT Syndrome until her oldest child, Ella, was diagnosed while doctors were looking for a heart murmur. At the time,...
ARVC Awareness: Michelle and Maddie’s Story
Can you tell me a little bit about your SADS journey? My oldest daughter Madeline and I are both affected by ARVC. We’re a very active family and...
LQTS Awareness: Marjaan’s Story
Can you tell me a little bit about your SADS journey? I've always fainted for no reason, maybe once or twice a year. It was either unprovoked or...