Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
Susan Cappello: A Genetic Journey
The Cappello family Can you tell me a little bit about your family’s SADS journey? This all started in 1980, on the night of Easter Sunday. My...
Advancing Care: Nora’s Story
Dr. Michael Vincent with Nora Lambert Can you tell a little bit about your family’s SADS journey? My son Matthew was born in 1969; he was the third...
SADS Spotlight: Michaela
At the age of 15 years old, I was a three season athlete in high school: soccer, basketball, and track and field. They were a huge part of how I...
Facebook Fundraising: Becky Knowles
Can you tell me a little bit about your family’s SADS journey? Our son was seven years old when he cardiac arrested. We went to go wake him up for...
Celebrating our SADS Moms
This Mother's Day, we want to give a huge shoutout to all of our SADS moms! Whether you have a SADS condition, or are caring for a child with a...
SADS Spotlight: Brooke Spangenberg
Growing up I suffered from frequent fainting spells and would talk about my heart “feeling funny” while playing competitive sports. I was a happy...
Keona: In Memory of Elijah and Chloe
Can you tell me a little bit about your family’s SADS journey? I have one surviving daughter, who is 14 and has Long QT Syndrome. In my family, we...
ICD Stories: Genevie Echols
This is a photo of my girls and I when I was asked to speak at a fundraiser for a gala. I spoke on some of my patient experience. The money raised...
Pregnancy Stories: Kellie Moore
My daughter, Sophia, will be four in April. She was born in 2017. I really didn't have any huge concerns going in. It was just very exciting. But of...
SADS Spotlight: Cynthia
Name: Cynthia Age: 58 years old Which SADS condition do you have? Type 1 LQT When were you diagnosed? Since 2008, over 10 years How are you treated?...
SADS Spotlight: Amy
When something unusual came up on Amy’s ECG in 2019, she was anxious about what could be wrong. She was having panic attacks and feeling very low,...
My Long QT Story- A Journey
I was diagnosed with Long QT syndrome in July 2001, I was 23 years old. I decided to share my story in hopes that it may help someone in the...