Welocome to the SADS Foundation
Welcome to the SADS Foundation where every heart counts. We’re so happy you found us and we thank you for your support.
The SADS (Sudden Arrhythmia Death Syndromes) Foundation is an international 501c3 patient advocacy nonprofit founded in 1991 that saves the lives and supports the families of those with genetic heart conditions or who’ve experienced Sudden Cardiac Arrest, including those with …
- Long QT Syndrome
- CPVT
- Brugada Syndrome
- ARVC (also called ACM)
- HCM
- Short QT Syndrome
- WPW Syndrome
- Idiopathic (Unknown) Ventricular Fibrillation
Just like the human heart, SADS has four “chambers” that make up its foundation:
Patient and Family Support Services
The patient and family support program provides access to information, resources, research and support to patients’ and families’ who are dealing with genetic conditions that can cause sudden cardiac death or who have lost a loved one to sudden unexplained death. Learn more
Physician & Health Professional Education
The SADS Foundation maintains an active physician education program through a network of researchers, who continually inform and train physicians to diagnose and treat SADS conditions, through seminars, conferences and medical journal publications. Learn More
Public Awareness
The SADS Foundation is dedicated to informing the general public, SADS families, and medical professionals about the effects of untreated/undiagnosed cardiac arrhythmias and the methods by which death can be prevented. Initiatives include sponsoring public awareness meetings in local communities, providing educational videos on SADS conditions, and establishing media relationships to promote publicity about these “silent killers”. Learn More
Advocacy and Research
We encourage, support, and team up with the medical community in genetic research. SADS is the link between medical science advances and families. SADS is committed to supporting efforts that will improve the quality of life for patients with heart rhythm abnormalities.
Research: Learn More
Advocacy: Learn More
- Family history of unexpected, unexplained sudden death under age 40
- Fainting or seizure during exercise, excitement or startle
- Consistent or unusual chest pain and/or shortness of breath during exercise