by Erinsads | Aug 29, 2023
One morning I didn’t wake up. He woke up beside me, just as he had for the last six years. But one thing was very different on this particular morning. I wasn’t already awake, the smell of coffee drifting from the kitchen. I wasn’t standing next to the...
by Erinsads | Aug 29, 2023
Hi everyone, Bill Layton here. I am writing this letter to all of our friends in Colorado and Wyoming and across the globe, to invite you to our annual Oktoberfest, to help raise money and awareness for the Sudden Arrhythmia Death Syndromes (SADS) Foundation every...
by Erinsads | Aug 29, 2023
Audrey Claire Koch is our precious, smiling daughter, and we are amazingly blessed to have her alive with us today! This is her story – up until today, when she is 19 months old, living and thriving with Long QT Syndrome! In April of 2010, we were excitedly 20 months...
by Erinsads | Aug 29, 2023
Alanna Kathleen- Bright, beautiful, outgoing, full of life and so very special. This incredible girl is four years old and is thriving as she lives with long QT. Her sassy personality lights up a room wherever she goes. Alanna was diagnosed at 2 months old through...
by Erinsads | Aug 29, 2023
Tom was diagnosed with LQTS when he was 9 years old. With no family history of sudden death, the news was quite a shock. Tom’s medical history has been very eventful. The day after returning home from a church youth ski trip, he had a full cardiac arrest. Our...
