by Erinsads | Jul 9, 2024
Keona: In Memory of Elijah and Chloe Can you tell me a little bit about your family’s SADS journey? I have one surviving daughter, who is 14 and has Long QT Syndrome. In my family, we have an aunt with Long QT Syndrome – who is the only reason that I ever knew my son...
by Erinsads | Jul 9, 2024
Brian was a junior and on the dean’s honor list at the University of Wisconsin-Madison, studying biomedical engineering and computer science. He truly loved his college experience and formed an amazing second family away from home. We are comforted knowing he was the...
by Erinsads | Jul 3, 2024
30th No Ball at All Invitation My son, Sonny Jude, went unresponsive (stopped breathing and his precious heart stopped beating) at six months old. His babysitter saw this and performed CPR and resuscitated him. It was then we learned that Sonny Jude has LQTS (Long...
by Erinsads | Jun 4, 2024
31st No Ball Invitation On a bright, sunny day Frankie is waddling down the street as toddlers do when suddenly, hysteria ensues. Frankie is crying and can’t calm down. My husband and I look all around him and see nothing. I get down on his level and take a closer...
by Erinsads | May 31, 2024
Brian tragically died from SCA with no warning signs or symptoms at the age of 34. Through genetic testing it was discovered after his death that he had a gene mutation linked to Brugada. Because of this, his younger brother was tested and diagnosed with Type 1...
