CPVT Awareness: Karly’s Story

Can you tell me a little bit about your family’s SADS journey? My daughter, Karly, had her first Sudden Cardiac Arrest at the age of ten. She was a competitive soccer player and dancer at the time, and was at a soccer tournament up at Lake Tahoe. In between games, she...

SCA Awareness: Daniela’s Story

Can you tell me a little bit about your SADS journey – from diagnosis to where you are today? I was diagnosed with Long QT Syndrome Type 1 when I was 22 years old. I was born with LQTS but wasn’t aware of it, nor was my family. The reason we discovered my LQTS was...

SCA Survivor Stories: Lindsay Casey

On January 13th, 2019, I woke up to a seemingly normal Sunday. I was a healthy, 30 year old mother sharing breakfast with my 11 month old son and my husband, Scott. When I went to get our son ready for church, Scott had a feeling that he needed to come check on us....