LQTS Awareness: Piper’s Story

Can you tell us a little bit about your SADS journey – from diagnosis to where you are now?  I’ve always played competitive sports my whole life. When I was 14, during a preseason, I had a Sudden Cardiac Arrest. I got to the ER right away and got...

Raising Awareness: Madison’s Story

Madison is one of only 60 people worldwide diagnosed with a rare PPA2 cardiac mutation. This drawing – inspired by her heart journey – is currently a finalist for the Google Doodle 2023 Scholarship, which would provide both Madison and SADS with funds – and help raise...

SCA Awareness: Maeve’s Story

In March of 2018, Maeve collapsed suddenly twenty minutes into softball practice – and went into Sudden Cardiac Arrest. It was her first symptom of an underlying heart problem. Thanks to the quick actions of her coach and trainer – who sprang into action and performed...

CPVT Awareness: Karly’s Story

Can you tell me a little bit about your family’s SADS journey? My daughter, Karly, had her first Sudden Cardiac Arrest at the age of ten. She was a competitive soccer player and dancer at the time, and was at a soccer tournament up at Lake Tahoe. In between games, she...

SCA Awareness: Daniela’s Story

Can you tell me a little bit about your SADS journey – from diagnosis to where you are today? I was diagnosed with Long QT Syndrome Type 1 when I was 22 years old. I was born with LQTS but wasn’t aware of it, nor was my family. The reason we discovered my LQTS was...