by SADS Foundation | May 23, 2024 | Blog
Adeline was diagnosed the day after birth with Long QT Syndrome Type 2. Now, Adeline is one of ten Children’s Miracle Network National Champions, and is sharing her LQTS story on a Cheerios box in Costco throughout the month of May. “Adeline was born a healthy,...
by SADS Foundation | Apr 9, 2024 | Blog
Nicole was diagnosed with Long QT Syndrome Type 1 at birth. Today, she’s in her last semester of medical school – and hopes to help others with rare diseases and disabilities access the support and expert medical care she received as a child with a SADS condition....
by SADS Foundation | Apr 20, 2020 | Blog
By Kerri D. and the SADS FoundationUpdated February 25, 2026 | 5 minute read In 2014, Kerri collapsed at home. Her pulse was racing at 276 beats per minute. She was rushed to the hospital, where her heart stopped – then restarted in a normal rhythm. After multiple...
by SADS Foundation | Oct 16, 2019 | Blog
At just eight months old, Lila survived sudden cardiac arrest with no warning — and ten years later, she’s thriving, reminding families that connection and community can make all the difference. By Jen W. and the SADS FoundationUpdated February 23, 2026 | 4 minute...
by SADS Foundation | Mar 18, 2019 | Blog
After years of fainting episodes and misdiagnoses, Chevy’s family finally uncovered Catecholaminergic Polymorphic Ventricular Tachycardia—and began rebuilding his life with strength and hope. By Chelsi M. and The SADS FoundationUpdates February 19 2026 | 7 min read...
