by Erinsads | Feb 27, 2024 | Blog
In 2016, Andy decided to complete a marathon in all fifty states. He wanted to finish this challenge quickly, and set a goal of running 10-12 marathons each year. In 2020, Andy experienced some concerning symptoms while training – including a high heart rate and...
by Erinsads | Feb 26, 2024 | Blog
When Miranda was eighteen, she learned that her health issues could potentially have been inherited from her biological father – who was a sperm donor. Diagnosed at 31 with Long QT Syndrome, Miranda is now on a mission to try and help others who had the same donor get...
by Erinsads | Feb 23, 2024 | Blog
Thirty-nine. That’s how old I am. It’s also the age when my father died. Losing my dad when I was just 11 years old has had a profound impact on me. Not only was I forced to navigate growing up without him, but I was also diagnosed with the same medical condition...
by Erinsads | Feb 23, 2024 | Awareness
We need to hear YOUR voice, YOUR story, YOUR experience with LQTS so we can represent the scope of impact this condition makes on families and individuals. We need the FDA to see how many families are impacted and how much of a difference new therapies would make –...
by Erinsads | Feb 22, 2024 | Blog
When Melissa was getting ready to start a family, she wanted to know whether her child would carry the same genetic variant that she had – for a heart condition known as Long QT Syndrome. Thanks to a test called fetal magnetocardiography, Melissa was able to learn...
