Callie’s LQTS Story

Can you tell me a little bit about your SADS journey – from your first symptom to where you are today? I had an arrhythmia while I was driving in August of 1998. While I was in the hospital, the doctor noticed a prolonged QT interval. My mother had passed away...

Brugada Syndrome Awareness: Leng’s Story

Can you tell me a little bit about your SADS journey – from diagnosis to where you are today? For me, the discovery of Brugada Syndrome was not triggered by any symptoms. My mother passed away from an unknown cardiac event. I knew she’d gone to the cardiologist many...

“I Have Hope For My Daughter” | Melanie’s ARVC Story

Melanie was diagnosed with ARVC (Arrhythmogenic Right Ventricular Cardiomyopathy) after experiencing ventricular tachycardia – a fast, irregular, and dangerous heart rhythm – in 2021. But that was just the beginning of Melanie’s heart journey. Melanie experienced...

CPVT Awareness: The Berko Family Story

Every morning I am greeted with the same bittersweet reality. Bitter is just a taste of the eternal emotion of losing a child. Sweet is the ever-present gratefulness that one of our children came back to life after being pronounced dead.   We choose to share our...

Caryn’s Long QT Syndrome Story

I have a strong family history of relatives experiencing “heart attacks” (or perhaps cardiac arrests) and dying at a young age. When I was a kid, I thought everyone eventually died of these “heart attacks”.  In my family, the deaths were instant, and happened while...