by Erinsads | Sep 1, 2023 | Blog
Jimmy’s dad and I adopted Jimmy when he was six weeks old. He was born with a cleft palette and other conditions that required repeated PE tubes and almost nonstop antibiotic use. His autism and Attention Deficit Disorder became apparent when he was very young. We...
by Erinsads | Jul 25, 2023 | Blog
by Deirdre R. Let her fly, they say. I want to. She will be fine, they say. I want to believe that too. I wake up sometimes in a panic and know which thoughts are breaking through the surface, forcing me awake. Will we make it in time? Will her device work as it...
by Erinsads | Jun 15, 2023 | Blog
Can you tell me a little bit about your journey – from diagnosis to where you are now? It started with stomach issues which led me to the ER, and they did an EKG there. And that’s when all this started because they saw type one Brugada pattern. I didn’t...
by Erinsads | Jun 8, 2023 | Blog
Can you tell me about your SADS journey- from diagnosis to where you are now? I’m originally from Guam. Moved to the states with my mom & dad when I was 8 years old. When I was six years old, my mom and I were on our way to a fiesta party. I was in the...
by Erinsads | Jun 5, 2023 | Blog
On December 21, 2022 I was playing tag with my sisters and neighbors when I collapsed in my neighbor’s yard. Thankfully my friends ran for help after my youngest sister found me unresponsive and blue in the face. 911 was called and I was taken to the hospital where I...
