by Erinsads | Sep 19, 2023 | Blog
Can you tell me a little bit about your SADS journey – from diagnosis to where you are today? For me, the discovery of Brugada Syndrome was not triggered by any symptoms. My mother passed away from an unknown cardiac event. I knew she’d gone to the cardiologist many...
by Erinsads | Sep 18, 2023 | Blog
Melanie was diagnosed with ARVC (Arrhythmogenic Right Ventricular Cardiomyopathy) after experiencing ventricular tachycardia – a fast, irregular, and dangerous heart rhythm – in 2021. But that was just the beginning of Melanie’s heart journey. Melanie experienced...
by Erinsads | Sep 12, 2023 | Blog
Every morning I am greeted with the same bittersweet reality. Bitter is just a taste of the eternal emotion of losing a child. Sweet is the ever-present gratefulness that one of our children came back to life after being pronounced dead. We choose to share our...
by Erinsads | Sep 11, 2023 | Blog
I have a strong family history of relatives experiencing “heart attacks” (or perhaps cardiac arrests) and dying at a young age. When I was a kid, I thought everyone eventually died of these “heart attacks”. In my family, the deaths were instant, and happened while...
by Erinsads | Sep 6, 2023 | Blog
About twenty years ago my older sister had an episode that almost took her life. Through this, she discovered she had a genetic disorder they called Long QT. At the time it was very foreign to doctors as well as us. Nobody had ever heard of this. Matter of fact, the...
by Erinsads | Sep 1, 2023 | Blog
Jimmy’s dad and I adopted Jimmy when he was six weeks old. He was born with a cleft palette and other conditions that required repeated PE tubes and almost nonstop antibiotic use. His autism and Attention Deficit Disorder became apparent when he was very young. We...
