by Erinsads | Apr 25, 2022 | Blog
Can you tell me a little bit about your ARVC journey – from diagnosis to where you are today? I had my first symptom of ARVC at 16 years old when I passed out. My mom called the doctor and he said I was a young, healthy, athletic woman who must have had low blood...
by Erinsads | Apr 22, 2022 | Blog
Can you tell me a little bit about your family’s SADS journey – from diagnosis to where you are today? Our journey starts with my husband’s daughter, who was having cardiac symptoms. The doctors didn’t know what was going on, so they did genetic testing, and found out...
by Erinsads | Apr 18, 2022 | Blog
Can you tell me a little bit about your family’s ARVC story? The first time our family heard of ARVC was in 2018 when my son, Greg – after the first of five Sudden Cardiac Arrests he’d experience in his lifetime – received the diagnosis. Seventeen years earlier, my...
by Erinsads | Nov 29, 2021 | Blog
Can you tell me a little bit about your SADS journey? I’m a junior in high school. I used to be figure skater until I was diagnosed with ARVC, and that’s how I found out that I had it – I was skating when I had some arrhythmias. After a long process of being...
by Erinsads | Sep 10, 2021 | Blog
Can you tell me a little bit about your SADS journey? In the spring of 2000, I went into sudden cardiac arrest. After about four weeks of testing, they finally realized I had Long QT Syndrome. I went for six months without a device. My mom really advocated for me, and...
by Erinsads | Aug 31, 2021 | Blog
In 2003 I was a very physically fit female Firefighter/Paramedic who was running full Marathons. I was 35 years old, a 14-year veteran of the Fire Service with not one event that would indicate I had any cardiac issue at all. Then, after a routine physical conducted...
