Returning to Play: Ella and Dawn’s Story

Dawn didn’t know she had Long QT Syndrome until her oldest child, Ella, was diagnosed while doctors were looking for a heart murmur. At the time, Dawn’s family was living in South Dakota; a cardiologist visited the town they lived in once every three months. Her...

ARVC Awareness: Michelle and Maddie’s Story

Can you tell me a little bit about your SADS journey? My oldest daughter Madeline and I are both affected by ARVC. We’re a very active family and have always been involved in sports. Maddie was in soccer, basketball, gymnastics and dance. Very competitive, very...

LQTS Awareness: Marjaan’s Story

Can you tell me a little bit about your SADS journey?  I’ve always fainted for no reason, maybe once or twice a year. It was either unprovoked or something simple such as tripping, getting hurt, or even being stung by a bee and I would faint.  Growing up, there...

LQTS Awareness: Stephanie’s Story

Can you tell me a little bit about your SADS journey? I had passed out a few times as a teen. When I was 18, I had been home alone, sick all week. I went into school for the day that week and was walking up the stairs. I remember seeing dots and being told that I had ...

AED Drawing: Mary’s Story

In October, the SADS Foundation held an opportunity drawing for an AED, which was generously donated by American AED, part of the One Beat Medical & Training Family. This drawing raised over $2,600 for us here at SADS – thanks to everyone who entered! Learn more...

Raising Awareness: Babett’s LQTS Story

In 2016, Babett’s daughter, Joriale, passed away from LQTS. This year, her book about her family’s journey was published – helping Babett spread awareness in honor of her daughter. In January of 2016, my daughter, Joriale, passed away from Long QT Syndrome. Nine...