Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
SCA Awareness Month: Eliott’s Story
When Eliott was just nine years old, he had a Sudden Cardiac Arrest (SCA) at an early-morning soccer game....
Tom’s CPVT Story
Tom and his daughter Meg Can you tell me a little bit about your SADS journey – from diagnosis to where your family is today? I’m the first one in...
Hailey & Shannon’s Wolff-Parkinson White Syndrome Story
This September, Hailey competed in the national and world amateur divisions for aerial silks. “Doing aerial silks always makes me feel free, like...
LQTS Awareness: Jackie’s Story
Jimmy, Jackie's son Crissy, Jackie's daughter Can you tell me a little bit about your SADS journey – from diagnosis to where your family is today?...
ARVC Awareness: Jeff’s Story
Can you tell me a little bit about your ARVC journey – from diagnosis to where you are today? Jeff & his son at a baseball game I was diagnosed...
ARVC: Stories from the Community
Lizzie Name: Lizzie How and when were you diagnosed? I was diagnosed with ARVC in the middle of a career of ultramarathon running at the age of...
Brugada Syndrome Awareness: Sandy Cowin
Sandy and her son, Jackson SADS billboard placed by Sandy in Binghamton, NY Sandy Cowin is on a mission to raise awareness about Brugada Syndrome –...
Melanie’s ARVC Story
My story would probably best be described as a roller coaster, with lots of ups and downs. I grew up between two brothers, and we did everything...
Brian Peck
Brian was a junior and on the dean’s honor list at the University of Wisconsin-Madison, studying biomedical engineering and computer science. He...
Chaunté’s LQTS Story
Chaunté and her daughter Kadence I'm a mom to three girls. When my second daughter, Kadence, was six months old, I took her to a pediatrician for a...
CPR & AED Awareness: Isaiah’s Story
Can you tell me a little bit about your heart journey – from diagnosis to where your family is today? On January 12, 2022, my son, Isaiah Bangoura,...
CPR & AED Awareness: Linton’s Story
Linton Beck had never had a symptom before his cardiac arrest on April 20, 2022. Linton, 16, was in chemistry class at Station Camp High School in...