Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
ARVC Awareness: Christy’s Story
In June 2023, the SADS Foundation brought the ARVC patient community together for a first ever FDA Externally-Led Patient-Focused Drug Development...
Brian Peck
Brian was a junior and on the dean’s honor list at the University of Wisconsin-Madison, studying biomedical engineering and computer science. He...
Joelle’s Heart Transplant Journey
When Joelle was 12, she passed out in church – and testing revealed that the culprit was ARVC. And it progressed quickly – a year after diagnosis,...
SADS Spotlight: Ruby
Can you tell me a little bit about your family’s SADS journey – from diagnosis to where you are today? Our journey starts with my husband’s...
ARVC Awareness: Tracy’s Story
Can you tell me a little bit about your ARVC journey – from diagnosis to where you are today? I had my first symptom of ARVC at 16 years old when I...
SADS Spotlight: Ruby
Can you tell me a little bit about your family’s SADS journey – from diagnosis to where you are today? Our journey starts with my husband’s...
SADS Spotlight: Stephanie
Stephanie and one of her daughters (who also has LQTS) Back in 1992, I was diagnosed with a condition called Long QT Heart Syndrome. Doctors...
Joelle’s Heart Transplant Journey
When Joelle was 12, she passed out in church – and testing revealed that the culprit was ARVC. And it progressed quickly – a year after diagnosis,...
ARVC Awareness: Adam’s Story
Can you tell me a little bit about your family’s ARVC story? The first time our family heard of ARVC was in 2018 when my son, Greg – after the first...
Volunteer Week Spotlight: Suzy Berndt
I was lucky – I was diagnosed at birth. The doctors knew something was off with my heart rhythm when I was in utero, but the technology back then...
Volunteer Week Spotlight: Carl Barnes
How did you get involved with the SADS Foundation? I was at the University of Colorado in late 1999, finishing my residency in internal medicine. In...
SADS Spotlight: Samantha
When I was 14, I starting blacking out and have seizure-like activity, and we saw different specialists, but they couldn’t figure out what was...