Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
CPR & AED Awareness: Isaiah’s Story
Can you tell me a little bit about your heart journey – from diagnosis to where your family is today? On January 12, 2022, my son, Isaiah Bangoura,...
CPR & AED Awareness: Linton’s Story
Linton Beck had never had a symptom before his cardiac arrest on April 20, 2022. Linton, 16, was in chemistry class at Station Camp High School in...
Get to Know Evan, Volunteer for the Canadian SADS Foundation
Evan Krueger is a third-year human biology student at the University of Toronto. A year and a half ago, he was diagnosed with Brugada Syndrome and...
ARVC Awareness: Jen’s Story
Can you tell me a little bit about your ARVC journey – from diagnosis to where you are today? I had my first symptoms years before my event. I did a...
ARVC Awareness: Christy’s Story
In June 2023, the SADS Foundation brought the ARVC patient community together for a first ever FDA Externally-Led Patient-Focused Drug Development...
Brian Peck
Brian was a junior and on the dean’s honor list at the University of Wisconsin-Madison, studying biomedical engineering and computer science. He...
Joelle’s Heart Transplant Journey
When Joelle was 12, she passed out in church – and testing revealed that the culprit was ARVC. And it progressed quickly – a year after diagnosis,...
SADS Spotlight: Ruby
Can you tell me a little bit about your family’s SADS journey – from diagnosis to where you are today? Our journey starts with my husband’s...
ARVC Awareness: Tracy’s Story
Can you tell me a little bit about your ARVC journey – from diagnosis to where you are today? I had my first symptom of ARVC at 16 years old when I...
SADS Spotlight: Ruby
Can you tell me a little bit about your family’s SADS journey – from diagnosis to where you are today? Our journey starts with my husband’s...
SADS Spotlight: Stephanie
Stephanie and one of her daughters (who also has LQTS) Back in 1992, I was diagnosed with a condition called Long QT Heart Syndrome. Doctors...
Joelle’s Heart Transplant Journey
When Joelle was 12, she passed out in church – and testing revealed that the culprit was ARVC. And it progressed quickly – a year after diagnosis,...