Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
SADS Spotlight: Tania
Name: Tania Cselka Age: 53 Which SADS condition do you have? Long QT Syndrome How are you treated? Beta Blockers & ICD How/when were you...
SADS Spotlight: Karin
Name: Karin Blåder, from Sweden Age: 33 Which SADS condition do you have? CPVT How are you treated? (Beta blocker, ICD, etc.) Beta blocker (Inderal)...
Joey’s Story of LQTS Type 2
Joey at golf camp through Children's Heart Association in Cincinnati. When my son, Joey, was six years old, he was diagnosed with Long QT Syndrome...
SADS Spotlight: Danielle
Name: Danielle Age: 38 Which SADS condition do you have? CPVT When were you diagnosed? Oct 2017, after 20 + yrs of misdiagnosis How are you...
SADS Spotlight: Kristin
Kristin's daughter the day she wore her first holter monitor. Name: Kristin Ristine Age: 34 Which SADS condition do you have? Long QT Syndrome...
Will’s Story of Brugada Syndrome
Will was 6 years old when he first experienced a fainting episode. He was walking up the hill with his dad & sister one day from school when he...
SADS Spotlight: Tenier Sims
Name: Tenier Sims Age: 43 Which SADS condition do you have? Brugada Syndrome When were you diagnosed? October 2018 How are you treated? Currently...
“Don’t Forget to Live Your Life” | Kerri’s ARVC Story
By Kerri D. and the SADS FoundationUpdated February 25, 2026 | 5 minute read In 2014, Kerri collapsed at home. Her pulse was racing at 276 beats per...
SADS Spotlight: Paula
Paula and her son Name: Paula Best Condition: Long QT Syndrome Diagnosed: 1999 aged 17 Treatment: Beta Blockers - 160mg Propanol per day What has...
SADS Spotlight: Natalie
Natalie in Maui on a snorkeling tour! Name: Natalie J Age: 27 Which SADS condition do you have? Long QT When were you diagnosed? August 2010 How are...
SADS Heart Bowl Spotlight
The SADS Foundation thanks Samantha Wilder for being a part of the SADS Foundation Heart Bowl during the month of February and bringing in the most...
SADS Spotlight Bella Alvarez
Bella getting ready to tumble with a heart monitor. GO BELLA! Name: Bella AlvarezAge: 11Which SADS condition do you have? CPVTWhen were you...