Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
Shhhh…….Dr. Michael J. Ackerman Appreciation Fund
Say THANKS to Dr. Ackerman! Support the life-saving services of the SADS Foundation! We will be announcing this SURPRISE on October 27th at the 11th...
SADS Spotlight: Bridget McGaughey
Bridget McGaughey, 37, has Long QT Syndrome and Brugada Syndrome. She was diagnosed in 2012 at age 32. Her treatment is an ICD. How/when were you...
A Long Journey: From SADS Patient to SADS Communications Coordinator
In the summer of 2009, I was a recent graduate from art school, a waitress in a pub, and an intern at a museum. Life was full of promise...
A Walker, Not A Runner
Some positives & observations of now being a walker & not a runner: 1. When it’s 4:30 in the morning I don’t even know cause I’m still...
5 Things I’ve Gained From Having A Heart Condition
by Kellie Kotraba Moore On the way to high school graduation rehearsal, a classmate made an unusual confession. “I’ve never told you this,” he said....
TAKE YOUR LIFE BACK!: Chronic Medical Conditions and School
Being “sidelined” from chronic medical condition symptoms can be both overwhelming and depressing. Though the comfort zone of home will inevitably...
Postpartum Self-Care Tips For Women With LQTS
by Kellie Kotraba Moore When life becomes a blur of sleepless nights, round-the-clock feedings, diaper changes, and newborn snuggles, it’s easy to...
Magnets and Airports: Should ICD Patients Be Afraid?
Editor's Note: This post is also on HCM Beat, a great resource for topics related to Hypertrophic Cardiomyopathy. When cardiac patients receive a...
Ten Signs You Might be Getting Over Your Cardiac Arrest
So, you’ve had a sudden cardiac arrest. For you and many of us, this marks the beginning of long-term medical interventions and therapies designed...
SADS Spotlight: Shannon Cron
Shannon Cron, 38, has Long QT Syndrome Type 2. She was diagnosed in 2017. She is treated with a beta blocker. How/when were you diagnosed?...
So you’re going to the Mayo Clinic…
Seeing the doctor is always stressful. It's even more so when you're from out of state (like me) or even out of country. It can be very...
So you’re going to the Mayo Clinic…
by Rachelle C. Seeing the doctor is always stressful. It’s even more so when you’re from out of state (like me) or even out of country. It can be...