Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
ARVC: Stories from the EL-PFDD
In June 2023, the SADS Foundation is bringing the ARVC patient community together for a first ever FDA Externally-Led Patient-Focused Drug...
LQTS Awareness: Charlie’s Story
I’ve known about my Long QT type 1 diagnosis for as long as I can remember. My mom, only after having my first sibling, Calvin, prematurely and...
Nelson | Living with ARVC
Nelson | Living with ARVC Tampa, FL | Born August 1971 “The problem is not dying. The problem is living with this damn disease.” The loud banging...
“The Future is Looking Brighter” | Alexis’s Long QT Syndrome Story
There’s new, exciting, and groundbreaking research on the horizon for SADS conditions. At the SADS Foundation, we’re working with companies who are...
LQTS Awareness: Piper’s Story
Can you tell us a little bit about your SADS journey - from diagnosis to where you are now? I've always played competitive sports my whole life....
Rachel | Living with ARVC
Rachel | Living with ARVC Phoenix, Arizona | Born January 1987 “I am forcing myself to...
Raising Awareness: Madison’s Story
Madison is one of only 60 people worldwide diagnosed with a rare PPA2 cardiac mutation. This drawing – inspired by her heart journey – is currently...
Brugada Awareness: Ruben and Grace’s Story
Can you tell me a little bit about your SADS journey – from diagnosis to where your family is today? It all started in September 2019, when my son,...
CPVT Awareness: Joey’s Story
Can you tell me a little more about your journey? My first symptoms of any cardiac issues started in August, 2011 while I was on a jog while living...
ARVC Awareness: Dawn’s Story
Can you tell me a little bit about your SADS journey? I've always been very healthy and athletic, always involved in running or walking. When I was...
Brugada Awareness: Doug’s Story
Can you tell me a little bit about your SADS journey? I have Brugada syndrome that was identified when I had Cardiac Arrest at home, then somehow...
SCA Awareness: Maeve’s Story
In March of 2018, Maeve collapsed suddenly twenty minutes into softball practice – and went into Sudden Cardiac Arrest. It was her first symptom of...