by kymera_editor | Nov 13, 2017 | Camp, Connecting with others
Camp can be an exciting and formative time during kids’ summer vacations, however for many parents with children with a heart disease, it might not be considered an option. As the director of one of several camps aimed specifically at children with heart disease, I am...
by kymera_editor | Aug 29, 2017 | Connecting with others, Long QT Syndrome, Sudden Cardiac Arrest
Twinkle, twinkle little bat…… When I was first diagnosed with LQTS, my family found the stories on the C.A.R.E Foundation website. One in particular- “How to live to be 102 with Long QT”- made an impact on me and my family. Reading a story of...
by kymera_editor | Jul 24, 2017 | Connecting with others, ICD
In December 2015, I found out I had a small problem on one of my leads in which it had a higher threshold pacing causing it to use more energy to detect my heart. I was given the choice to have the leads extracted sooner or wait until replacement time. Due to my...
by kymera_editor | Jul 24, 2017 | Conference, Connecting with others
As I sit here on train to Mineola Station I know one thing for sure: I am confident . Confident of the condition I was born with, the limits I posses, and the boundaries I can break. Outside the window to my right passes scrawny trees and packed cities. This sight is...
