by kymera_editor | Aug 27, 2017 | Long QT Syndrome, Managing Multiple Diagnoses
Azariah getting an EKG Our Family Our precious Azariah My name is Angela and I am married with two children ages 2-1/2 and 6 months. Our journey through serious medical uncertainty started when I got pregnant with my 2-1/2 year old son, Azariah. From the onset of my...
by kymera_editor | Jul 31, 2017 | Fundraising, ICD, Long QT Syndrome, Sudden Cardiac Arrest
On the morning of June 7th, 2014, our just turned 2-year-old daughter suffered a sudden cardiac arrest in our home. This came as a complete shock to us, as it occurred with no warning whatsoever. Once stabilized in the ambulance in our driveway, she was transported to...
by kymera_editor | Jun 28, 2017 | Fundraising, Long QT Syndrome, Sudden Cardiac Arrest
This is Abrielle Watschke. In 2014, she survived an out of hospital sudden cardiac arrest. Today, she is thriving with Long QT Syndrome. Read the Watschke family’s story here. Donate to the 2017 No Ball at All Campaign in honor of this amazing...
by kymera_editor | Jun 12, 2017 | Long QT Syndrome
My daughters have a life-threatening condition and on most days, I’m not worried. Should I be worried? My sister, Christie, died suddenly when she was 24 years old. So, you’d think I would be even more worried about my kids, right? I feel safe, and I feel...
by kymera_editor | May 15, 2017 | Long QT Syndrome
My experience with Long QT Syndrome began at about age 7, or at least I think it did. One of the funny things about this condition is you don’t know for sure if it caused you to lose consciousness if you don’t have an EKG or some other kind of heart monitor hooked up...
by kymera_editor | Jan 31, 2017 | Long QT Syndrome
Sometimes normal life involves taunting my dogs with donuts on a Sunday morning Sometimes normal life involves having coffee in a hospital after having an ICD pocket revision. I remember the day I got married. It was hot and the tulle of my dress was scratchy...
