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  • SADS Conditions
    • Acquired LQTS
    • Arrhythmogenic Right Ventricular Dysplasia/Cardiomyopathy (ARVD/C)
    • Brugada Syndrome
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The Jones Family’s Story

by kymera_editor | Mar 25, 2022 | Awareness, Fundraising, Grief and Loss, Long QT Syndrome, Parenting

Deby and her granddaughter SaylorMarissa and her daughter SaylorDeby and her daughter Marissa “We celebrate Graeme every day in our family by persevering and sticking together, against all odds.” Deby’s Story I was 28 when I was diagnosed with LQTS in 1989. In 2000,...

In Memory of Brian Peck

by kymera_editor | Mar 7, 2022 | Fundraising, Grief and Loss, Raising Awareness, Raising Funds, Sudden Cardiac Arrest

Brian was a junior and on the dean’s honor list at the University of Wisconsin-Madison, studying biomedical engineering and computer science. He truly loved his college experience and formed an amazing second family away from home. We are comforted knowing he was the...

In Memory of Sonny Jude: Sam’s Story

by kymera_editor | Mar 2, 2022 | Awareness, Fundraising, Grief and Loss, Long QT Syndrome, Raising Awareness, Raising Funds

Lyla, Sonny Jude’s sister, at the pancake breakfast My son, Sonny Jude, went unresponsive (stopped breathing and his precious heart stopped beating) at six months old.  His babysitter saw this and performed CPR and resuscitated him.  It was then we...

SADS Spotlight: Alan London

by kymera_editor | Jan 11, 2022 | Fundraising, Grief and Loss, Long QT Syndrome, SADS Spotlight

In 1997, my wife and I had three kids. Our son Michael, who was eleven, had fainted twice. The first time, it was explained away by the E.R. and his pediatrician as a vasovagal episode from unusual activities. The second time, he got an EKG and was examined by a...

SADS Spotlight: The Blum Family

by kymera_editor | Jan 4, 2022 | Fundraising, Grief and Loss, Long QT Syndrome, SADS Spotlight

In 1999, we got a phone call on a Friday from our son who lived on a college campus where his sister also went to school. We were on vacation. He said that his sister had passed away – he wanted to tell us before the police called us. Nobody knew why she had passed...

Facebook Fundraising: Becky Knowles

by kymera_editor | May 19, 2021 | Awareness, Fundraising, Long QT Syndrome

Can you tell me a little bit about your family’s SADS journey? Our son was seven years old when he cardiac arrested. We went to go wake him up for school and we found him dead in bed, and we did CPR. He was in a coma, and had hypothermia therapy, and then recovered....
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