by SADS Foundation | Sep 10, 2025 | Blog
In 2019, Amy lost her husband, Adam, to undiagnosed Brugada Syndrome – leaving family, friends and their two young boys, who were just three and six years old at the time. Amy now serves on the Brugada Syndrome Steering Committee at the SADS Foundation to help other...
by SADS Foundation | Feb 13, 2025 | Blog
Running your first marathon while raising money for the SADS Foundation is no easy feat; neither is figuring out how to tell your 9-year-old she has Brugada Syndrome, so Camila “Mila” did something inventive. She used the marathon as a vehicle to tell her daughter,...
by SADS Foundation | Sep 16, 2024 | Blog
Elliott was diagnosed with Brugada Syndrome in 2020. And he credits the discovery of this rare cardiac condition to an episode of “How I Met Your Mother.” In 2019, Elliott’s brother was diagnosed with a congenital heart condition after undergoing an EKG at work. “I...
by Erinsads | Feb 16, 2024 | Blog
Shane was diagnosed with Brugada Syndrome in March of 2021 after ending up the E.R. for a stomach bug. He had an ICD installed two months later. “I had asked my doctor for some medicine for my stomach bug, which just wasn’t going away,” says Shane. “They did an EKG as...
by Erinsads | Dec 20, 2023 | Blog
Mark’s completed six half-Ironman and two Olympic triathlon events across the globe in the last two years, and completed a full Ironman this past September in Italy – all after being diagnosed with Brugada Syndrome. When Mark was thirteen, he had what he calls...
