Brittan’s CPVT Story

While she was in high school, Brittan started to experience shortness of breath during athletics. Her doctor told her that she just needed to eat more salt – and a week later, she experienced Sudden Cardiac Arrest during a high school swim practice. “Growing up, I was...

CPVT Awareness: The Berko Family Story

Every morning I am greeted with the same bittersweet reality. Bitter is just a taste of the eternal emotion of losing a child. Sweet is the ever-present gratefulness that one of our children came back to life after being pronounced dead.   We choose to share our...

CPVT Awareness: Madalyn’s Story

On December 21, 2022 I was playing tag with my sisters and neighbors when I collapsed in my neighbor’s yard. Thankfully my friends ran for help after my youngest sister found me unresponsive and blue in the face. 911 was called and I was taken to the hospital where I...

CPVT Awareness: Joey’s Story

Can you tell me a little more about your journey? My first symptoms of any cardiac issues started in August, 2011 while I was on a jog while living in St. Louis. Because I was a competitive athlete my entire life, I thought that I was just out of shape now that I’d...

CPVT Awareness: Karly’s Story

Can you tell me a little bit about your family’s SADS journey? My daughter, Karly, had her first Sudden Cardiac Arrest at the age of ten. She was a competitive soccer player and dancer at the time, and was at a soccer tournament up at Lake Tahoe. In between games, she...