The Importance of Family History: Patrei’s LQTS Story

The SADS Foundation encourages families to take a medical history of their immediate and extended family. What follows is a prime example of why. Patrei, a mother of three, didn’t know Long QT ran in her family until 2020, but her aunt Heidi was diagnosed in 1990. How...

Planting Trees with Heart: Treebute

In May of 2020, Elizabeth’s close friend passed away suddenly and unexpectedly. She tried to think of a way to support his family after this tragic loss – and wanted to give them a gift that didn’t involve food or flowers, since both are temporary. That’s when...

Let’s Hear It for SADS Volunteer Family Fundraisers!

The SADS Foundation would like to highlight the volunteer fundraising events that have happened or will happen this summer and fall!  We are so grateful to all the volunteers who get together with their families and friends to organize special events to help other...

Raising Awareness: Madison’s Story

Madison is one of only 60 people worldwide diagnosed with a rare PPA2 cardiac mutation. This drawing – inspired by her heart journey – is currently a finalist for the Google Doodle 2023 Scholarship, which would provide both Madison and SADS with funds – and help raise...

Brugada Awareness: Ruben and Grace’s Story

Can you tell me a little bit about your SADS journey – from diagnosis to where your family is today? It all started in September 2019, when my son, Ruben, was hospitalized – that was the first time we ever heard of Brugada Syndrome. He had a lung infection, and his...