by sadsfoundation | Mar 15, 2023 | Blog
Madison is one of only 60 people worldwide diagnosed with a rare PPA2 cardiac mutation. This drawing – inspired by her heart journey – is currently a finalist for the Google Doodle 2023 Scholarship, which would provide both Madison and SADS with funds – and help raise...
by sadsfoundation | Mar 13, 2023 | Blog
Can you tell me a little bit about your SADS journey – from diagnosis to where your family is today? It all started in September 2019, when my son, Ruben, was hospitalized – that was the first time we ever heard of Brugada Syndrome. He had a lung infection, and his...
by sadsfoundation | Dec 9, 2022 | Blog
In 2016, Babett’s daughter, Joriale, passed away from LQTS. This year, her book about her family’s journey was published – helping Babett spread awareness in honor of her daughter. In January of 2016, my daughter, Joriale, passed away from Long QT Syndrome. Nine...
by sadsfoundation | Nov 10, 2022 | Blog
Jordan was a happy, healthy, and beloved 26-year-old when he died suddenly from an undiagnosed SADS condition in November of 2019. “I had never even heard of SADS conditions until we lost Jordan and read the acronym ‘SADS’ on the coroner’s report,” says his mother,...
by sadsfoundation | Nov 29, 2021 | Blog
Can you tell me a little bit about your SADS journey? I’m a junior in high school. I used to be figure skater until I was diagnosed with ARVC, and that’s how I found out that I had it – I was skating when I had some arrhythmias. After a long process of being...
