by Erinsads | Dec 9, 2022 | Blog
In 2016, Babett’s daughter, Joriale, passed away from LQTS. This year, her book about her family’s journey was published – helping Babett spread awareness in honor of her daughter. In January of 2016, my daughter, Joriale, passed away from Long QT Syndrome. Nine...
by Erinsads | Nov 10, 2022 | Blog
Jordan was a happy, healthy, and beloved 26-year-old when he died suddenly from an undiagnosed SADS condition in November of 2019. “I had never even heard of SADS conditions until we lost Jordan and read the acronym ‘SADS’ on the coroner’s report,” says his mother,...
