by SADS Foundation | Jul 8, 2025 | Blog
With this blog, I want to begin something that has lived inside me for a long time. Iām sharing the story of our daughter Liv because I feel it deserves to be told. Not just to raise awareness for a rare condition like LQTS, but also to show how much love, hope, and...
by Erinsads | Dec 9, 2022 | Blog
In 2016, Babettās daughter, Joriale, passed away from LQTS. This year, her book about her familyās journey was published ā helping Babett spread awareness in honor of her daughter. In January of 2016, my daughter, Joriale, passed away from Long QT Syndrome. Nine...
by Erinsads | Nov 10, 2022 | Blog
Jordan was a happy, healthy, and beloved 26-year-old when he died suddenly from an undiagnosed SADS condition in November of 2019. āI had never even heard of SADS conditions until we lost Jordan and read the acronym āSADSā on the coronerās report,ā says his mother,...
