Rachel | Living with ARVC

Rachel | Living with ARVC                                                     Phoenix, Arizona | Born January 1987   “I am forcing myself to take it easy—which is not easy.” Rachel grabs her tennis racket and heads onto the court. She savors the cool spring air,...

ARVC Awareness: Dawn’s Story

Can you tell me a little bit about your SADS journey?  I’ve always been very healthy and athletic, always involved in running or walking. When I was young, I ran track, cross country and participated in a lot of 5K’s and a few Tough Mudders as well as a half...

Jason | Living with ARVC

Jason | Living with ARVC                                    West Newbury, Massachusetts | Born July 1984   “I used to hike three or four peaks in a day and not really see what’s going on. Now, I spend more time smelling the flowers on a leisurely jaunt—looking...

ARVC Awareness: Michelle and Maddie’s Story

Can you tell me a little bit about your SADS journey? My oldest daughter Madeline and I are both affected by ARVC. We’re a very active family and have always been involved in sports. Maddie was in soccer, basketball, gymnastics and dance. Very competitive, very...

ARVC Awareness: Mike’s Story

In 2001, Mike’s sister, Jackie, passed away at the age of 31 from undiagnosed ARVC. Mike, his brother, and Jackie’s husband, Adam, formed a support network for affected individuals and their families. Adam is cycling across Canada to raise awareness of ARVC, connect...