by sadsfoundation | Mar 16, 2023 | Blog
Rachel | Living with ARVC Phoenix, Arizona | Born January 1987 “I am forcing myself to take it easy—which is not easy.” Rachel grabs her tennis racket and heads onto the court. She savors the cool spring air,...
by sadsfoundation | Mar 3, 2023 | Blog
Can you tell me a little bit about your SADS journey? I’ve always been very healthy and athletic, always involved in running or walking. When I was young, I ran track, cross country and participated in a lot of 5K’s and a few Tough Mudders as well as a half...
by sadsfoundation | Jan 30, 2023 | Blog
Jason | Living with ARVC West Newbury, Massachusetts | Born July 1984 “I used to hike three or four peaks in a day and not really see what’s going on. Now, I spend more time smelling the flowers on a leisurely jaunt—looking...
by sadsfoundation | Jan 6, 2023 | Blog
Can you tell me a little bit about your SADS journey? My oldest daughter Madeline and I are both affected by ARVC. We’re a very active family and have always been involved in sports. Maddie was in soccer, basketball, gymnastics and dance. Very competitive, very...
by sadsfoundation | Nov 14, 2022 | Blog
In 2001, Mike’s sister, Jackie, passed away at the age of 31 from undiagnosed ARVC. Mike, his brother, and Jackie’s husband, Adam, formed a support network for affected individuals and their families. Adam is cycling across Canada to raise awareness of ARVC, connect...
