by SADS Foundation | Dec 2, 2025 | Blog
By Jessica V. and the SADS Foundation Published December 2, 2025 | 15 minute read Jessica swings into the saddle and heads out with her daughter for a 50-mile endurance horseback ride. From the outside, it might look like any other long-distance ride – but Jessica is...
by SADS Foundation | Oct 3, 2024 | Blog
When Jadale was nine, he experienced his very first symptom of CPVT – a terrifying episode in which he lost consciousness in the rain and had to drag himself across a parking lot to find help. Jadale is now a D2 athlete in shotput and discus at Roosevelt University in...
by Erinsads | Mar 29, 2024 | Blog
In June 2024, the SADS Foundation is bringing the LQTS and CPVT patient communities together for an FDA Externally-Led Patient-Focused Drug Development Meeting (EL-PFDD). This meeting gives the FDA and other key stakeholders — including researchers, biopharma...
by Erinsads | Feb 27, 2024 | Blog
In 2016, Andy decided to complete a marathon in all fifty states. He wanted to finish this challenge quickly, and set a goal of running 10-12 marathons each year. In 2020, Andy experienced some concerning symptoms while training – including a high heart rate and...
by Erinsads | Dec 20, 2023 | Blog
Mark’s completed six half-Ironman and two Olympic triathlon events across the globe in the last two years, and completed a full Ironman this past September in Italy – all after being diagnosed with Brugada Syndrome. When Mark was thirteen, he had what he calls...
