by kymera_editor | Apr 20, 2020 | Awareness, Brugada Syndrome, Genetic Testing, Schools, Sudden Cardiac Arrest, Uncategorized
Will was 6 years old when he first experienced a fainting episode. He was walking up the hill with his dad & sister one day from school when he fainted. We couldn’t tell if the kids were making it up & playing a joke on dad while I was at work. The next...
by kymera_editor | Apr 20, 2020 | Brugada Syndrome, Uncategorized
Name: Tenier Sims Age: 43 Which SADS condition do you have? Brugada Syndrome When were you diagnosed? October 2018 How are you treated? Currently being monitored How/when were you diagnosed? I was diagnosed when I became so fatigued that I couldn’t walk, so I went to...
by kymera_editor | Apr 16, 2020 | Uncategorized
Paula and her son Name: Paula Best Condition: Long QT Syndrome Diagnosed: 1999 aged 17 Treatment: Beta Blockers – 160mg Propanol per day What has been the biggest challenge you’ve faced in living with your diagnosis? When my son was born last August, he...
by kymera_editor | Apr 7, 2020 | ICD, Long QT Syndrome, Parenting, SADS Spotlight
Natalie in Maui on a snorkeling tour! Name: Natalie J Age: 27 Which SADS condition do you have? Long QT When were you diagnosed? August 2010 How are you treated? (Beta blocker, ICD, etc.) Beta blocker and ICD How/when were you diagnosed? I was diagnosed at 17...
by kymera_editor | Mar 18, 2020 | Uncategorized
The SADS Foundation thanks Samantha Wilder for being a part of the SADS Foundation Heart Bowl during the month of February and bringing in the most donors for this campaign!! Name: Samantha Wilder Age: 30 Which SADS condition do you have? Long QT Syndrome, Type 1...