by kymera_editor | Jul 12, 2022 | Awareness, Long QT Syndrome, Parenting
Chaunté and her daughter Kadence I’m a mom to three girls. When my second daughter, Kadence, was six months old, I took her to a pediatrician for a routine well-child check and immunizations. And when he was doing the initial examination, he noticed that her...
by kymera_editor | Apr 26, 2022 | Awareness, Brugada Syndrome, Parenting, SADS Kids
Can you tell me a little bit about your family’s SADS journey – from diagnosis to where you are today? Our journey starts with my husband’s daughter, who was having cardiac symptoms. The doctors didn’t know what was going on, so they did genetic testing, and found out...
by kymera_editor | Apr 21, 2022 | Long QT Syndrome, Parenting, SADS Spotlight
Stephanie and one of her daughters (who also has LQTS) Back in 1992, I was diagnosed with a condition called Long QT Heart Syndrome. Doctors discovered it through medication interactions, which caused a cardiac arrest. Doctors didn’t know as much about the condition...
by kymera_editor | Apr 4, 2022 | Awareness, Long QT Syndrome, Parenting
When I was 14, I starting blacking out and have seizure-like activity, and we saw different specialists, but they couldn’t figure out what was causing the seizures. They did a bunch of different tests – MRIs and CAT scans – which all came back normal. Because of my...
by kymera_editor | Mar 25, 2022 | Awareness, Fundraising, Grief and Loss, Long QT Syndrome, Parenting
“We celebrate Graeme every day in our family by persevering and sticking together, against all odds.” Deby’s Story I was 28 when I was diagnosed with LQTS in 1989. In 2000, we learned from my Electrophysiologist, Dr. Blair Halperin that we could do genetic testing for...
by kymera_editor | Feb 23, 2022 | Advocacy, Long QT Syndrome, Parenting, SADS Kids, Sports/Exercise
Alexis and her mother, Meredith, at Mayo ClinicAlexis competing this FebruaryAlexis with coach Lee Eves MitchellAlexis Loveless Can you tell me a little bit about your SADS journey – from diagnosis, to your dance competition this past Friday? Alexis: I was shadowing a...
