by kymera_editor | Jul 9, 2021 | Awareness, CPVT, Grief and Loss, ICD, SCA Survivor
Could you talk a little bit about your family’s SADS journey? My story begins on June 11, 2001, when my mom had a Sudden Cardiac Arrest. And unfortunately, she passed away. When you’re six years old, and you lose a parent unexpectedly, there are so many unanswered...
by kymera_editor | Jul 6, 2021 | Connecting with others, Genetic Testing, Rare Disease, Research
The Cappello family Can you tell me a little bit about your family’s SADS journey? This all started in 1980, on the night of Easter Sunday. My family spent a full day with my oldest brother, and then he went to bed, and died suddenly in his sleep. The autopsy didn’t...
by kymera_editor | Jul 2, 2021 | Awareness, Long QT Syndrome
Dr. Michael Vincent with Nora Lambert Can you tell a little bit about your family’s SADS journey? My son Matthew was born in 1969; he was the third child. His first three years were absolutely wonderful –he was a fine healthy boy. He suddenly got a rash one day, and I...
by kymera_editor | Jun 9, 2021 | Awareness, ICD, Long QT Syndrome, SADS Spotlight, Sports/Exercise
At the age of 15 years old, I was a three season athlete in high school: soccer, basketball, and track and field. They were a huge part of how I defined myself – I loved sports. I was in a track and field hurdle event, got dizzy at the finish line, and almost passed...
by kymera_editor | May 19, 2021 | Awareness, Fundraising, Long QT Syndrome
Can you tell me a little bit about your family’s SADS journey? Our son was seven years old when he cardiac arrested. We went to go wake him up for school and we found him dead in bed, and we did CPR. He was in a coma, and had hypothermia therapy, and then recovered....
