by SADS Foundation | Oct 13, 2025 | Blog
After years of fainting episodes and misdiagnoses, Dalia discovered she was living with Long QT Syndrome – and turned her journey into one of resilience, advocacy, and hope. By: The SADS Foundation and Dalia B. Published October 20, 2025 | 10 min read “I don’t...
by SADS Foundation | Oct 8, 2025 | Blog
Ammon was diagnosed with a genetic heart condition called CPVT at just five years old after experiencing Sudden Cardiac Arrest (SCA) while playing outside with his brother. In July of 2025, he experienced SCA yet again while at a church youth camp. His family is...
by SADS Foundation | Oct 6, 2025 | Blog
In neighboring Michigan communities, two families who had never met now share a lifelong bond – one forged in the most unexpected way: sudden cardiac arrest (SCA). In March of 2025, during track tryouts, 14-year-old Alyssa suddenly collapsed. Coaches rushed to...
by SADS Foundation | Oct 6, 2025 | Blog
written by Michael Grivas I am 27 years old and I come from Greece. Four years ago… my life suddenly changed. When I learned that I have Brugada Syndrome, yes… I felt like the ground was slipping away beneath my feet. In 2021, I was hospitalized with acute myocarditis...
by SADS Foundation | Sep 22, 2025 | Blog
When Shane and Kristi’s middle son suddenly lost his hearing in 2022, their son underwent genetic testing to try and find the cause – which revealed a genetic variant for Long QT Syndrome Type 2. Kristi and her family were shocked – until they realized...
