by SADS Foundation | Jul 10, 2025 | Blog
Do you have a personal connection to the SADS Foundation? In 2022, our daughter Lavinia—Lovey—passed away as the result of an undiagnosed cardiac event. While we may never know exactly what happened, we do know how deeply painful it is to lose a child without answers....
by SADS Foundation | Jul 8, 2025 | Blog
With this blog, I want to begin something that has lived inside me for a long time. I’m sharing the story of our daughter Liv because I feel it deserves to be told. Not just to raise awareness for a rare condition like LQTS, but also to show how much love, hope, and...
by SADS Foundation | Jul 8, 2025 | Blog
Brandon had six “fainting” episodes before the age of ten before he learned that he has Long QT Syndrome, a condition that affects the heart’s rhythm – and that it runs in his family. Today, Brandon is returning to college to learn engineering so he can work on...
by SADS Foundation | Jul 1, 2025 | Blog
In the fall of 2013, Steve and his wife traded swim practice drop-off and pick-up duty for long nights under the glaring fluorescent lights of a pediatric CVICU. Kate, their 15-year-old daughter, had just been hospitalized for a syncopal (fainting) episode during a...
by SADS Foundation | Jul 1, 2025 | Blog
The SADS Foundation encourages families to take a medical history of their immediate and extended family. What follows is a prime example of why. Patrei, a mother of three, didn’t know Long QT ran in her family until 2020, but her aunt Heidi was diagnosed in 1990. How...
