by SADS Foundation | Feb 13, 2025 | Blog
Running your first marathon while raising money for the SADS Foundation is no easy feat; neither is figuring out how to tell your 9-year-old she has Brugada Syndrome, so Camila “Mila” did something inventive. She used the marathon as a vehicle to tell her daughter,...
by SADS Foundation | Dec 20, 2024 | Blog
by Kiersten Rock-Torcivia Who is this girl? What is on her chest? On her chest, just below her left collarbone, is a black oval outline shadowed with gray. Slashing diagonally through the upper part of the shape sits a vibrant raw pink scar. From the upper part of the...
by SADS Foundation | Dec 17, 2024 | Blog
Nine months ago, on March 14, 2024 (National Pi Day, to be exact), something happened to me that didn’t make sense No matter how many highly trained, world-renowned doctors at the Cleveland Clinic diagnosed and treated me, they still can’t explain exactly why what...
by SADS Foundation | Oct 30, 2024 | Blog
17 year old Delainee dreams of a day when she can connect with hospitalized children bringing them comfort and connection the way her mother, Kerri, did the many times DeLainee was hospitalized, “I wish I could share my experience by handing the pillows out.” DeLainee...
by SADS Foundation | Oct 24, 2024 | Blog
“Telling you all of that is like telling someone’s else’s story,” Tana said as I interviewed her on a bright, sunny fall day in October. Nine months earlier in January 2024, her days were dark and unnumbered. For seven days she laid in a medically induced coma...
