by Erinsads | Sep 12, 2023 | Blog
Every morning I am greeted with the same bittersweet reality. Bitter is just a taste of the eternal emotion of losing a child. Sweet is the ever-present gratefulness that one of our children came back to life after being pronounced dead. We choose to share our...
by Erinsads | Sep 11, 2023 | Blog
I have a strong family history of relatives experiencing “heart attacks” (or perhaps cardiac arrests) and dying at a young age. When I was a kid, I thought everyone eventually died of these “heart attacks”. In my family, the deaths were instant, and happened while...
by Erinsads | Sep 6, 2023 | Blog
About twenty years ago my older sister had an episode that almost took her life. Through this, she discovered she had a genetic disorder they called Long QT. At the time it was very foreign to doctors as well as us. Nobody had ever heard of this. Matter of fact, the...
by Erinsads | Sep 1, 2023 | Blog
Jimmy’s dad and I adopted Jimmy when he was six weeks old. He was born with a cleft palette and other conditions that required repeated PE tubes and almost nonstop antibiotic use. His autism and Attention Deficit Disorder became apparent when he was very young. We...
by Erinsads | Jul 25, 2023 | Blog
by Deirdre R. Let her fly, they say. I want to. She will be fine, they say. I want to believe that too. I wake up sometimes in a panic and know which thoughts are breaking through the surface, forcing me awake. Will we make it in time? Will her device work as it...
by Erinsads | Jun 15, 2023 | Blog
Can you tell me a little bit about your journey – from diagnosis to where you are now? It started with stomach issues which led me to the ER, and they did an EKG there. And that’s when all this started because they saw type one Brugada pattern. I didn’t...
