Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
LQTS Awareness: Allison’s Story
Can you tell me a little bit about your SADS journey? I was diagnosed with Long QT Type 1 in 2018, following the birth of my twin daughters. About a...
Returning to Play: Ella and Dawn’s Story
Dawn didn’t know she had Long QT Syndrome until her oldest child, Ella, was diagnosed while doctors were looking for a heart murmur. At the time,...
ARVC Awareness: Michelle and Maddie’s Story
Can you tell me a little bit about your SADS journey? My oldest daughter Madeline and I are both affected by ARVC. We’re a very active family and...
LQTS Awareness: Marjaan’s Story
Can you tell me a little bit about your SADS journey? I've always fainted for no reason, maybe once or twice a year. It was either unprovoked or...
LQTS Awareness: Stephanie’s Story
Can you tell me a little bit about your SADS journey? I had passed out a few times as a teen. When I was 18, I had been home alone, sick all week. I...
AED Drawing: Mary’s Story
In October, the SADS Foundation held an opportunity drawing for an AED, which was generously donated by American AED, part of the One Beat Medical...
Raising Awareness: Babett’s LQTS Story
In 2016, Babett’s daughter, Joriale, passed away from LQTS. This year, her book about her family’s journey was published – helping Babett spread...
Genetic Counselor Appreciation: Genevie & Lindsay Meyers
Genevie’s children have LQTS, which was only discovered through genetic testing. Her youngest daughter had more severe symptoms of LQTS, and went...
Family Health History Matters
Family Health History Month is a national initiative that encourages families to share their medical history with relatives who may also be...
LQTS Awareness: Dick’s Story
Can you tell me a little bit about your SADS journey – from diagnosis to where your family is today? In 1991, I was a single dad living in Houston....
ARVC Awareness: Mike’s Story
In 2001, Mike’s sister, Jackie, passed away at the age of 31 from undiagnosed ARVC. Mike, his brother, and Jackie’s husband, Adam, formed a support...
Raising Awareness: Jordan’s Story
Jordan was a happy, healthy, and beloved 26-year-old when he died suddenly from an undiagnosed SADS condition in November of 2019. “I had never even...