Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
LQTS Awareness: Stephanie’s Story
Can you tell me a little bit about your SADS journey? I had passed out a few times as a teen. When I was 18, I had been home alone, sick all week. I...
AED Drawing: Mary’s Story
In October, the SADS Foundation held an opportunity drawing for an AED, which was generously donated by American AED, part of the One Beat Medical...
Raising Awareness: Babett’s LQTS Story
In 2016, Babett’s daughter, Joriale, passed away from LQTS. This year, her book about her family’s journey was published – helping Babett spread...
Genetic Counselor Appreciation: Genevie & Lindsay Meyers
Genevie’s children have LQTS, which was only discovered through genetic testing. Her youngest daughter had more severe symptoms of LQTS, and went...
Family Health History Matters
Family Health History Month is a national initiative that encourages families to share their medical history with relatives who may also be...
LQTS Awareness: Dick’s Story
Can you tell me a little bit about your SADS journey – from diagnosis to where your family is today? In 1991, I was a single dad living in Houston....
ARVC Awareness: Mike’s Story
In 2001, Mike’s sister, Jackie, passed away at the age of 31 from undiagnosed ARVC. Mike, his brother, and Jackie’s husband, Adam, formed a support...
Raising Awareness: Jordan’s Story
Jordan was a happy, healthy, and beloved 26-year-old when he died suddenly from an undiagnosed SADS condition in November of 2019. “I had never even...
Fundraiser Spotlight: Stephanie
Can you tell me about your family’s SADS journey, from diagnosis to where you are today? When I was 30 years old, I had a Sudden Cardiac Arrest. I...
ARVC Awareness: Regina’s Story
Can you tell me little bit about your ARVC journey – from your diagnosis to where you are today? I was 34 years old when I started to have symptoms...
SCA Awareness Month: Eliott’s Story
When Eliott was just nine years old, he had a Sudden Cardiac Arrest (SCA) at an early-morning soccer game....
Tom’s CPVT Story
Tom and his daughter Meg Can you tell me a little bit about your SADS journey – from diagnosis to where your family is today? I’m the first one in...