Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
ARVC Awareness: Adam’s Story
Can you tell me a little bit about your family’s ARVC story? The first time our family heard of ARVC was in 2018 when my son, Greg – after the first...
Volunteer Week Spotlight: Suzy Berndt
I was lucky – I was diagnosed at birth. The doctors knew something was off with my heart rhythm when I was in utero, but the technology back then...
Volunteer Week Spotlight: Carl Barnes
How did you get involved with the SADS Foundation? I was at the University of Colorado in late 1999, finishing my residency in internal medicine. In...
SADS Spotlight: Samantha
When I was 14, I starting blacking out and have seizure-like activity, and we saw different specialists, but they couldn’t figure out what was...
The Jones Family’s Story
“We celebrate Graeme every day in our family by persevering and sticking together, against all odds.” Deby’s Story I was 28 when I was diagnosed...
Sandy’s Story: Media Volunteer Spotlight
Sandy and her son JacksonSandy's dad and her son Jackson This Heart Month, volunteer Sandy Cowin made a huge impact through sharing her story with...
In Memory of Brian Peck
Brian was a junior and on the dean’s honor list at the University of Wisconsin-Madison, studying biomedical engineering and computer science. He...
In Memory of Sonny Jude: Sam’s Story
Lyla, Sonny Jude's sister, at the pancake breakfast My son, Sonny Jude, went unresponsive (stopped breathing and his precious heart stopped beating)...
Heart Month Awareness: Alexis Loveless
Alexis and her mother, Meredith, at Mayo ClinicAlexis competing this FebruaryAlexis with coach Lee Eves MitchellAlexis Loveless Can you tell me a...
Heart Month Awareness: Sarah’s Story
The first time I fainted, I was a freshman in high school. I got up early to go pack boxes in the food kitchen, and I hadn’t eaten breakfast, and...
SADS Spotlight: Alan London
In 1997, my wife and I had three kids. Our son Michael, who was eleven, had fainted twice. The first time, it was explained away by the E.R. and his...
SADS Spotlight: The Blum Family
In 1999, we got a phone call on a Friday from our son who lived on a college campus where his sister also went to school. We were on vacation. He...