Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
SADS Spotlight: Amy
When something unusual came up on Amy’s ECG in 2019, she was anxious about what could be wrong. She was having panic attacks and feeling very low,...
My Long QT Story- A Journey
I was diagnosed with Long QT syndrome in July 2001, I was 23 years old. I decided to share my story in hopes that it may help someone in the...
SCA Stories: Allyson Koorhan
In October of last year, I had just arrived in Boise, ID. I work for an airline and was gearing up for two weeks of business travel, which would end...
SCA Stories: Story of “H”
My elderly next-door neighbor, “H”, finally put a timer on his living room lamp so if he was not home the house would not be dark. Unfortunately,...
SCA Survivor Stories: Sue Morris
Sue thanking her hero's at McCall Fire and Police Department My husband and I were up at our cabin in McCall, ID on August 7, 2020. My husband,...
SCA Survivor Stories: Lindsay Casey
On January 13th, 2019, I woke up to a seemingly normal Sunday. I was a healthy, 30 year old mother sharing breakfast with my 11 month old son and my...
SCA Survivor Stories: Lindsay Casey
On January 13th, 2019, I woke up to a seemingly normal Sunday. I was a healthy, 30 year old mother sharing breakfast with my 11 month old son and my...
SCA Survivor: Daiana
The first time I had my cardiac arrest was February 13th, 2016. My cardiac arrest occurred when I was at baseball practice and I told my...
SADS Spotlight: Karly Gonthier
Name: Karly Gonthier Age: 13 Which SADS condition do you have? CPVT When were you diagnosed? June, 2019 How are you treated? (Beta blocker,...
SADS Spotlight: Cian Bennett
Name: Cian Bennett Age: 13 Diagnosis: Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT) Age of Diagnosis: 13 What led to your...
Jessica Robinson and her story of LQTS
My name is Jessica, I am 22 years old and I have LQTS. Throughout my childhood and adolescence, I was involved in many activities, including...
SADS Spotlight: Ayden
Name: Ayden Age: 13 Diagnosis: Long QT type 1; diagnosed at age 12 I was really sick and dehydrated my mom took me to the doctor and they sent me to...