Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
SADS Spotlight: Susana
Susana participates in triathlons as well as the Paralympics. Name: Susana Rodríguez Age: 32 Which SADS condition do you have? Long QT...
SADS Spotlight: Sophie
Name: Sophie Thatcher Age: 19 Which SADS condition do you have? Long QT Syndrome How are you treated? Beta blockers How were you diagnosed? In 2018,...
SADS at Home: Nora
Nora Lambert, 87 years old! As told by Nora: Here in New Orleans where the virus is rampant, a doctor (Cory Herbert) reviews things each day on one...
SADS at Home: Andy Golden
Andy celebrated his birthday on March 22! I turned 60 on March 22nd. The big party my wife planned was cancelled. I spent my birthday totally alone...
Lily’s Story of CPVT
Lily and her sister Charlotte My daughter has CPVT. My daughter, Lily, suffered sudden cardiac arrest while swimming in our pool on July 8, 2012....
SADS Spotlight: Justin
Name: Justin Price Age: 4 years old Which SADS condition do you have? Brugada Syndrome When were you diagnosed? He was diagnosed one week after his...
SADS Spotlight: Rebecca
Name: Rebecca Schmidling Age: 40 Which SADS condition do you have? ARVC When were you diagnosed? 2012 at age 32. How are you treated? (Beta...
Mason and Steve: Life with Long QT Syndrome
Steve and his son Mason from a night in the hospital Hello. My name is Mason Inman. I am 12. On March 18th, 2019 while attending school, I...
SADS Spotlight: Heather Darling
Heather and her son Carter Name: Heather Darling Age: 33 Which SADS condition do you have? Long QT Syndrome Type 2 When were you diagnosed? A little...
Wolff-Parkinson-White Syndrome: Gail Zur
I was misdiagnosed as a child: I was told I had a heart murmur and often couldn’t join in with physical activities due to fainting a lot. I now know...
SADS Spotlight: Tania
Name: Tania Cselka Age: 53 Which SADS condition do you have? Long QT Syndrome How are you treated? Beta Blockers & ICD How/when were you...
SADS Spotlight: Karin
Name: Karin Blåder, from Sweden Age: 33 Which SADS condition do you have? CPVT How are you treated? (Beta blocker, ICD, etc.) Beta blocker (Inderal)...