Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
SADS Spotlight: Jaclyn
Name: Jaclyn K. Age: 38 Which SADS condition do you have? LQTS1 How are you treated? Treated with beta blockers from age 14 and AICD implant at age...
My story of Brugada Syndrome
Sissy Sullins living and thriving with Brugada My name is Sissy. I was diagnosed with Brugada Syndrome at age 39. I am now 60 years old. I will...
An Altered Path
Hi! My name is Holly Mulder. I am 29 years old and I have CPVT. I live in Charlotte, NC with my husband and English Bulldog, Oliver. ...
SADS Spotlight: Cole
Name: Christian "Cole" InmanAge: 14When was your SCA? May 13, 2016/Sept 17, 2018Which SADS condition do you have? CPVTHow are you treated? Nadolol...
SADS Spotlight: Kiara
I am 27 years old and currently living with a SADS condition (Long QT Syndrome). I am always happy to share my story as it sheds light to the...
SADS Spotlight: Dave
Name: Dave Whelan Age: 57 When was your SCA? Feb 10, 2012Which SADS condition do you have? Brugada Syndrome How are you treated? ICD and regular...
SADS Spotlight: Heather
Name: Heather Whitehurst Age: 36When was your SCA? September 26, 2015 Which SADS condition do you have? LQTS How are you treated? Beta blocker, ICD,...
“Find Someone Who Knows What You’re Going Through” | Lila’s Heart Story
At just eight months old, Lila survived sudden cardiac arrest with no warning — and ten years later, she’s thriving, reminding families that...
SADS Spotlight: Lisa
Name: Lisa Paglia Age: 52Which SADS condition do you have? LQT2 When were you diagnosed? 2 years After SCA in 1985 How are you treated? ICD...
SADS Spotlight: Beth
Name: Beth RoyAge: 58What SADS Condition do you have? LQT1 When were you diagnosed? 2016 How are you treated? Nadolol (beta blocker) How were you...
SADS Spotlight: Kaitlyn
Name: Kaitlyn Miller Age: 29 Which SADS condition do you have? Brugada SyndromeWhen were you diagnosed? June 2019 How are you...
Welcome to Atlanta!
Welcome to Atlanta! Our family is thrilled that Atlanta is hosting this year’s SADS Foundation Conference. There are so many delicious new...