Blog

Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!

To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.

SADS Heart Bowl Spotlight

The SADS Foundation thanks Samantha Wilder for being a part of the SADS Foundation Heart Bowl during the month of February and bringing in the most...

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SADS Spotlight Bella Alvarez

Bella getting ready to tumble with a heart monitor. GO BELLA! Name: Bella AlvarezAge: 11Which SADS condition do you have? CPVTWhen were you...

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SADS Spotlight Tisha

Name: Tisha M. Age: 36 y/o Which SADS condition do you have? Brugada Syndrome When were you diagnosed? 12/27/19 How are you...

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SADS Spotlight: Jaclyn

Name: Jaclyn Kernion Age: 38Which SADS condition do you have? LQTS1How are you treated? Treated with beta blockers from age 14 and AICD implant at...

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SADS Spotlight: Jaclyn

Name: Jaclyn K. Age: 38 Which SADS condition do you have? LQTS1 How are you treated? Treated with beta blockers from age 14 and AICD implant at age...

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My story of Brugada Syndrome

Sissy Sullins living and thriving with Brugada My name is Sissy. I was diagnosed with Brugada Syndrome at age 39. I am now 60 years old. I will...

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An Altered Path

Hi! My name is Holly Mulder.  I am 29 years old and I have CPVT. I live in Charlotte, NC with my husband and English Bulldog, Oliver. ...

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SADS Spotlight: Cole

Name: Christian "Cole" InmanAge: 14When was your SCA? May 13, 2016/Sept 17, 2018Which SADS condition do you have? CPVTHow are you treated?  Nadolol...

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SADS Spotlight: Kiara

I am 27 years old and currently living with a SADS condition (Long QT Syndrome). I am always happy to share my story as it sheds light to the...

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SADS Spotlight: Dave

Name: Dave Whelan Age: 57 When was your SCA? Feb 10, 2012Which SADS condition do you have? Brugada Syndrome How are you treated?  ICD and regular...

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SADS Spotlight: Heather

Name: Heather Whitehurst Age: 36When was your SCA? September 26, 2015 Which SADS condition do you have? LQTS How are you treated? Beta blocker, ICD,...

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