Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
So you’re going to the Mayo Clinic…
Seeing the doctor is always stressful. It's even more so when you're from out of state (like me) or even out of country. It can be very...
So you’re going to the Mayo Clinic…
by Rachelle C. Seeing the doctor is always stressful. It’s even more so when you’re from out of state (like me) or even out of country. It can be...
SADS Spotlight: Kristie Lindblom
Kristie Lindblom, 38, has Long QT Syndrome Type 2. She was diagnosed in 1999 at 19 years old. Her treatment includes a beta blocker,...
SADS Spotlight: Kellie Moore
Kellie Moore, 30, has Long QT Syndrome Type 2. She was diagnosed during childhood, and she is currently taking a beta blocker. What’s your diagnosis...
Family Raises Thousands of Dollars with Milk and Cookies
Fundraisers don’t have to be big or expensive to make a difference—they can be as simple as having people over for milk and cookies. That’s...
Tales from the Big Red box
Every 10 years the American College of Cardiology publishes a large document about athletic eligibility for people with heart issues. These...
Broken Hearts
My heart breaks every time that I hear of a child dying suddenly from an undetected heart condition. How does one recover from knowing...
Following Mom’s Example: Transmitting Advocacy Skills To The Next Generation
Note from SADS Channel: we recently posed the question of 'how does your family handle deciding if meds are ok to take?' to several LQTS families....
Can I take this?: The Quest For Finding OTC Medications With LQTS
When you don't have any known health conditions or allergies, finding an over-the-counter (OTC) medication to treat a minor illness is fairly...
WHEN PIGS FLY
WHEN PIGS FLY As the loud telephone ring startles me from my sleep, I inexplicably collapse to the floor and am rushed to the hospital where my...
How An Incidental EKG Led To A LQTS Diagnosis
For Natalie Moye, what started as a basic wellness check led to a life-changing diagnosis. She was 26, and she had just given birth to her first...
How To Approach Online Communities For Research Calls
As a fast growing online patient support community with 5700+ members, my Facebook group “Living with an ICD” is attracting the attention of...