Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
SADS Spotlight: Kristie Lindblom
Kristie Lindblom, 38, has Long QT Syndrome Type 2. She was diagnosed in 1999 at 19 years old. Her treatment includes a beta blocker,...
SADS Spotlight: Kellie Moore
Kellie Moore, 30, has Long QT Syndrome Type 2. She was diagnosed during childhood, and she is currently taking a beta blocker. What’s your diagnosis...
Family Raises Thousands of Dollars with Milk and Cookies
Fundraisers don’t have to be big or expensive to make a difference—they can be as simple as having people over for milk and cookies. That’s...
Tales from the Big Red box
Every 10 years the American College of Cardiology publishes a large document about athletic eligibility for people with heart issues. These...
Broken Hearts
My heart breaks every time that I hear of a child dying suddenly from an undetected heart condition. How does one recover from knowing...
Following Mom’s Example: Transmitting Advocacy Skills To The Next Generation
Note from SADS Channel: we recently posed the question of 'how does your family handle deciding if meds are ok to take?' to several LQTS families....
Can I take this?: The Quest For Finding OTC Medications With LQTS
When you don't have any known health conditions or allergies, finding an over-the-counter (OTC) medication to treat a minor illness is fairly...
WHEN PIGS FLY
WHEN PIGS FLY As the loud telephone ring startles me from my sleep, I inexplicably collapse to the floor and am rushed to the hospital where my...
How An Incidental EKG Led To A LQTS Diagnosis
For Natalie Moye, what started as a basic wellness check led to a life-changing diagnosis. She was 26, and she had just given birth to her first...
How To Approach Online Communities For Research Calls
As a fast growing online patient support community with 5700+ members, my Facebook group “Living with an ICD” is attracting the attention of...
Why I’m At Peace With Giving A Beta Blocker To My Baby
A mother with Long QT Syndrome shares how beginning beta blocker treatment at birth gave her family peace of mind—and helped her daughter thrive...
Camp for Children with a Heart Disease
Camp can be an exciting and formative time during kids’ summer vacations, however for many parents with children with a heart disease, it might not...