Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
CRISPR-Cas9
“This possibly represents the greatest discovery of the century. With this technology, we could end suffering and disease for billions of people.”...
Don’t forget to live
I very often hear people tell others to "live like you're dying" but I think we can all agree that is not great advice. I understand the sentiment:...
Nerve Pain Story
After a few years of my initial implant of my ICD, I started to have pain in my incision. The pain started out as mild and only occur occasionally....
Bats
Twinkle, twinkle little bat...... When I was first diagnosed with LQTS, my family found the stories on the C.A.R.E Foundation website. One in...
Our Journey of Uncertainty and Hope
My name is Angela and I am married with two children ages 2-1/2 and 6 months. Our journey through serious medical uncertainty started when I got...
Our Journey of Uncertainty and Hope
Azariah getting an EKG Our Family Our precious Azariah My name is Angela and I am married with two children ages 2-1/2 and 6 months. Our journey...
The Trolls Taught Me A Lesson
The trolls used the night from August 28th to August 29th 2014 well. When I - the founder and administrator of the Living with an ICD Facebook...
Abbreviations commonly used in cardiology
A list of abbreviations commonly used in cardiology DFT- Defibrillation threshold testing VT- Ventricular tachycardia VF- Ventricular fibrillation...
A list of abbreviations commonly used in cardiology
A list of abbreviations commonly used in cardiology. DFT- Defibrillation threshold testing VT- Ventricular tachycardia VF- Ventricular fibrillation...
Anchor of Support
On the morning of June 7th, 2014, our just turned 2-year-old daughter suffered a sudden cardiac arrest in our home. This came as a complete shock to...
Lead Extraction Story
In December 2015, I found out I had a small problem on one of my leads in which it had a higher threshold pacing causing it to use more energy to...
I Learned I Was Not Alone
As I sit here on train to Mineola Station I know one thing for sure: I am confident . Confident of the condition I was born with, the limits I...