Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
Why I’m At Peace With Giving A Beta Blocker To My Baby
A mother with Long QT Syndrome shares how beginning beta blocker treatment at birth gave her family peace of mind—and helped her daughter thrive...
Camp for Children with a Heart Disease
Camp can be an exciting and formative time during kids’ summer vacations, however for many parents with children with a heart disease, it might not...
CRISPR-Cas9
“This possibly represents the greatest discovery of the century. With this technology, we could end suffering and disease for billions of people.”...
Don’t forget to live
I very often hear people tell others to "live like you're dying" but I think we can all agree that is not great advice. I understand the sentiment:...
Nerve Pain Story
After a few years of my initial implant of my ICD, I started to have pain in my incision. The pain started out as mild and only occur occasionally....
Bats
Twinkle, twinkle little bat...... When I was first diagnosed with LQTS, my family found the stories on the C.A.R.E Foundation website. One in...
Our Journey of Uncertainty and Hope
My name is Angela and I am married with two children ages 2-1/2 and 6 months. Our journey through serious medical uncertainty started when I got...
Our Journey of Uncertainty and Hope
Azariah getting an EKG Our Family Our precious Azariah My name is Angela and I am married with two children ages 2-1/2 and 6 months. Our journey...
The Trolls Taught Me A Lesson
The trolls used the night from August 28th to August 29th 2014 well. When I - the founder and administrator of the Living with an ICD Facebook...
Abbreviations commonly used in cardiology
A list of abbreviations commonly used in cardiology DFT- Defibrillation threshold testing VT- Ventricular tachycardia VF- Ventricular fibrillation...
A list of abbreviations commonly used in cardiology
A list of abbreviations commonly used in cardiology. DFT- Defibrillation threshold testing VT- Ventricular tachycardia VF- Ventricular fibrillation...
Anchor of Support
On the morning of June 7th, 2014, our just turned 2-year-old daughter suffered a sudden cardiac arrest in our home. This came as a complete shock to...