Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
#ThisisACM: Cassidy’s ACM Story
At just seventeen years old, Cassidy – a competitive athlete – was diagnosed with ACM (arrhythmogenic cardiomyopathy). She experienced her first...
Annie Lucatuorto
Annie Lucatuorto, daughter of Cathleen and board member Anthony, had a cardiac arrest while swimming at a YMCA when she was ten years old. After...
Brittan’s CPVT Story
While she was in high school, Brittan started to experience shortness of breath during athletics. Her doctor told her that she just needed to eat...
Meredyth’s LQTS Story
When Meredyth was twelve, she was diagnosed with asthma because she was often short of breath when playing sports. At the time, she played lacrosse...
Completing an Ironman with Brugada Syndrome: Mark’s Story
Mark’s completed six half-Ironman and two Olympic triathlon events across the globe in the last two years, and completed a full Ironman this past...
Your Questions About Exercise & Sports Participation
In January 2024, we’re dedicating an entire month to giving you the latest updates on sports and exercise participation for SADS conditions. This...
What’s your New Years resolution?
Our SADS Live episode about New Years resolutions is on December 29 at 2:20 PM ET ... and we want to know, what's your resolution this year? Share...
A Twin’s Tale: The Critical Role of Genetic Testing and Knowing Your Family Health History in Managing Heart Health
In 2016, Alesha started experiencing symptoms like severe nausea and syncope (fainting) – but didn’t know what could be causing them. That August,...
Let’s Hear It for SADS Volunteer Family Fundraisers!
The SADS Foundation would like to highlight the volunteer fundraising events that have happened or will happen this summer and fall! We are so...
Sudden Cardiac Arrest and Brugada Awareness: Jennette’s Story
Jennette experienced Sudden Cardiac Arrest (SCA) in December of 2022 while having the flu. She survived – and in hospital was diagnosed with Brugada...
Callie’s LQTS Story
Can you tell me a little bit about your SADS journey – from your first symptom to where you are today? I had an arrhythmia while I was driving in...
Brugada Syndrome Awareness: Leng’s Story
Can you tell me a little bit about your SADS journey – from diagnosis to where you are today? For me, the discovery of Brugada Syndrome was not...