Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
Caryn’s Long QT Syndrome Story
I have a strong family history of relatives experiencing “heart attacks” (or perhaps cardiac arrests) and dying at a young age. When I was a kid, I...
Mark’s LQTS Story
About twenty years ago my older sister had an episode that almost took her life. Through this, she discovered she had a genetic disorder they called...
LQTS Awareness: Diane and Jimmy’s Story
Jimmy’s dad and I adopted Jimmy when he was six weeks old. He was born with a cleft palette and other conditions that required repeated PE tubes and...
Off to College
by Deirdre R. Let her fly, they say. I want to. She will be fine, they say. I want to believe that too. I wake up sometimes in a panic and know...
Abby’s Brugada and WPW Story
Can you tell me a little bit about your journey - from diagnosis to where you are now? It started with stomach issues which led me to the ER, and...
LQTS Awareness: David’s Story
Can you tell me about your SADS journey- from diagnosis to where you are now? I'm originally from Guam. Moved to the states with my mom & dad...
CPVT Awareness: Madalyn’s Story
On December 21, 2022 I was playing tag with my sisters and neighbors when I collapsed in my neighbor’s yard. Thankfully my friends ran for help...
CPR and AED Awareness: Matt’s Story
Matt Clark is alive today because of the quick actions of his coworkers – at 40,000 feet in the air. Matt, who was an airline pilot at the time, had...
Living with ARVC | Julia’s Story
Julia | Living with ARVC Santa Rosa, CA | Born January 1992 “This is something I’ve had to deal with every single day for more than two years....
ARVC Awareness: Katherine’s Story
“This whole experience completely changed my perspective on life. I think now I am easier on myself, I lean on the people I love a little more, and...
ARVC: Stories from the EL-PFDD
In June 2023, the SADS Foundation is bringing the ARVC patient community together for a first ever FDA Externally-Led Patient-Focused Drug...
LQTS Awareness: Charlie’s Story
I’ve known about my Long QT type 1 diagnosis for as long as I can remember. My mom, only after having my first sibling, Calvin, prematurely and...