ARVC Awareness: Adam’s Story

Can you tell me a little bit about your family’s ARVC story? The first time our family heard of ARVC was in 2018 when my son, Greg – after the first of five Sudden Cardiac Arrests he’d experience in his lifetime – received the diagnosis. Seventeen years earlier, my...

Our Journey of Uncertainty and Hope

My name is Angela and I am married with two children ages 2-1/2 and 6 months. Our journey through serious medical uncertainty started when I got pregnant with my 2-1/2 year old son, Azariah. From the onset of my pregnancy things became complicated. At my antimony scan...

One Long QT Journey

By: Jett H. My experience with Long QT Syndrome began at about age 7, or at least I think it did. One of the funny things about this condition is you don’t know for sure if it caused you to lose consciousness if you don’t have an EKG or some other kind of heart...