ARVC Awareness: Matthew’s Story

In October of 2022, Matthew was taking a dinner break during a World of Dance rehearsal in New York City when he experienced Sudden Cardiac Arrest (SCA). It was his first symptom of an underlying heart condition. A friend started CPR, and Matthew was shocked twice...

CPVT Awareness: The Berko Family Story

Every morning I am greeted with the same bittersweet reality. Bitter is just a taste of the eternal emotion of losing a child. Sweet is the ever-present gratefulness that one of our children came back to life after being pronounced dead.   We choose to share our...

LQTS Awareness: Diane and Jimmy’s Story

Jimmy’s dad and I adopted Jimmy when he was six weeks old. He was born with a cleft palette and other conditions that required repeated PE tubes and almost nonstop antibiotic use. His autism and Attention Deficit Disorder became apparent when he was very young. We...

Abby’s Brugada and WPW Story

Can you tell me a little bit about your journey – from diagnosis to where you are now?  It started with stomach issues which led me to the ER, and they did an EKG there. And that’s when all this started because they saw type one Brugada pattern.  I didn’t...