by Erinsads | Mar 29, 2024 | Blog
In June 2024, the SADS Foundation is bringing the LQTS and CPVT patient communities together for an FDA Externally-Led Patient-Focused Drug Development Meeting (EL-PFDD). This meeting gives the FDA and other key stakeholders — including researchers, biopharma...
by Erinsads | Feb 27, 2024 | Blog
In 2016, Andy decided to complete a marathon in all fifty states. He wanted to finish this challenge quickly, and set a goal of running 10-12 marathons each year. In 2020, Andy experienced some concerning symptoms while training – including a high heart rate and...
by Erinsads | Feb 26, 2024 | Blog
When Miranda was eighteen, she learned that her health issues could potentially have been inherited from her biological father – who was a sperm donor. Diagnosed at 31 with Long QT Syndrome, Miranda is now on a mission to try and help others who had the same donor get...
by Erinsads | Feb 22, 2024 | Blog
When Melissa was getting ready to start a family, she wanted to know whether her child would carry the same genetic variant that she had – for a heart condition known as Long QT Syndrome. Thanks to a test called fetal magnetocardiography, Melissa was able to learn...
by Erinsads | Jan 22, 2024 | Blog
During a typical morning run in August of 2022, Nathan became lightheaded and had to lie down on the sidewalk. After he was found by two other runners, he was taken to the hospital, where he was diagnosed with ARVC – and he’s joining the SADS Foundation ARVC Steering...
