by SADS Foundation | Dec 2, 2025 | Blog
By Jessica V. and the SADS Foundation Published December 2, 2025 | 15 minute read Jessica swings into the saddle and heads out with her daughter for a 50-mile endurance horseback ride. From the outside, it might look like any other long-distance ride – but Jessica is...
by SADS Foundation | Oct 23, 2025 | Blog
Matt’s first symptom was Sudden Cardiac Arrest; his next act is resilience, as he learns to live – and dance – safely with ARVC. By: The SADS Foundation and Matt K. Published October 24, 2025 | 15 min read “You will be able to push the boulder over the...
by SADS Foundation | Jul 8, 2025 | Blog
Brandon had six “fainting” episodes before the age of ten before he learned that he has Long QT Syndrome, a condition that affects the heart’s rhythm – and that it runs in his family. Today, Brandon is returning to college to learn engineering so he can work on...
by SADS Foundation | May 7, 2025 | Blog
by Sue Bresnahan When you first get a rare genetic diagnosis for your child, it’s like the floor disappears beneath your feet. As a pediatric nurse for 20 years and a mom of three, I knew something was off with my youngest son, Patrick. He didn’t move much. He didn’t...
by Erinsads | Mar 29, 2024 | Blog
In June 2024, the SADS Foundation is bringing the LQTS and CPVT patient communities together for an FDA Externally-Led Patient-Focused Drug Development Meeting (EL-PFDD). This meeting gives the FDA and other key stakeholders — including researchers, biopharma...
