by Erinsads | Mar 15, 2023 | Blog
Madison is one of only 60 people worldwide diagnosed with a rare PPA2 cardiac mutation. This drawing – inspired by her heart journey – is currently a finalist for the Google Doodle 2023 Scholarship, which would provide both Madison and SADS with funds – and help raise...
by Erinsads | Mar 3, 2023 | Blog
Can you tell me a little bit about your SADS journey? I have Brugada syndrome that was identified when I had Cardiac Arrest at home, then somehow came out of it. A few years before that I had passed out while wearing a Holter monitor. At first I thought I’d had a...
by Erinsads | Feb 27, 2023 | Blog
Can you tell me a little bit about your SADS journey – from diagnosis to where you are today? I remember having episodes in early grade school. I would get in trouble all the time for “daydreaming.” Many decades later this turned out to be Ventricular Tachycardia. I...
by Erinsads | Feb 9, 2023 | Blog
Did you know that one important part of keeping your heart healthy this National Heart Month is by learning more about what’s in your genes? Take it from Julia – who was diagnosed in 2020 with Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC), a genetic disease...
by Erinsads | Feb 8, 2023 | Blog
In November 2022, we asked people to share their stories as they took our genetic testing survey – and we are so grateful for everyone who talked with us, wrote down their story, or left us a voicemail! Here are some of the stories shared by the SADS community....
