by SADS Foundation | Sep 10, 2025 | Blog
In 2019, Amy lost her husband, Adam, to undiagnosed Brugada Syndrome – leaving family, friends and their two young boys, who were just three and six years old at the time. Amy now serves on the Brugada Syndrome Steering Committee at the SADS Foundation to help other...
by SADS Foundation | Feb 24, 2025 | Blog
Morgan was diagnosed with CPVT after passing out on the playground just before her tenth birthday. Morgan – an active, loving, and beautiful little girl with a huge heart – pivoted from playing basketball and soccer to sewing, cooking, and playing the piano. Morgan...
by SADS Foundation | Aug 14, 2024 | Blog
“I’m working with the technology that could have saved his life” Colin Peck’s Story In 2019, Colin Peck lost his brother, Brian, suddenly and tragically to an undiagnosed heart condition. Today, Colin works at Medtronic – a company that makes pacemakers and ICDs – to...
by Erinsads | Mar 29, 2024 | Blog
In June 2024, the SADS Foundation is bringing the LQTS and CPVT patient communities together for an FDA Externally-Led Patient-Focused Drug Development Meeting (EL-PFDD). This meeting gives the FDA and other key stakeholders — including researchers, biopharma...
by Erinsads | Oct 4, 2023 | Blog
Can you tell me a little bit about your SADS journey – from your first symptom to where you are today? I had an arrhythmia while I was driving in August of 1998. While I was in the hospital, the doctor noticed a prolonged QT interval. My mother had passed away...
