by SADS Foundation | Aug 14, 2024 | Blog
“I’m working with the technology that could have saved his life” Colin Peck’s Story In 2019, Colin Peck lost his brother, Brian, suddenly and tragically to an undiagnosed heart condition. Today, Colin works at Medtronic – a company that makes pacemakers and ICDs – to...
by Erinsads | Mar 29, 2024 | Blog
In June 2024, the SADS Foundation is bringing the LQTS and CPVT patient communities together for an FDA Externally-Led Patient-Focused Drug Development Meeting (EL-PFDD). This meeting gives the FDA and other key stakeholders — including researchers, biopharma...
by Erinsads | Oct 4, 2023 | Blog
Can you tell me a little bit about your SADS journey – from your first symptom to where you are today? I had an arrhythmia while I was driving in August of 1998. While I was in the hospital, the doctor noticed a prolonged QT interval. My mother had passed away...
by Erinsads | Sep 12, 2023 | Blog
Every morning I am greeted with the same bittersweet reality. Bitter is just a taste of the eternal emotion of losing a child. Sweet is the ever-present gratefulness that one of our children came back to life after being pronounced dead. We choose to share our...
by Erinsads | Mar 13, 2023 | Blog
Can you tell me a little bit about your SADS journey – from diagnosis to where your family is today? It all started in September 2019, when my son, Ruben, was hospitalized – that was the first time we ever heard of Brugada Syndrome. He had a lung infection, and his...
