Keona: In Memory of Elijah and Chloe

Can you tell me a little bit about your family’s SADS journey? I have one surviving daughter, who is 14 and has Long QT Syndrome. In my family, we have an aunt with Long QT Syndrome – who is the only reason that I ever knew my son had it, which led to me knowing I had...

CPVT Awareness: The Osterhout Family Story

The year 1987 brought an unexpected tragedy to the Osterhout family when their son Matt, age 17, died suddenly. As part of his regular routine, Matt had jogged from his home to work. However, minutes later he was gone. Matt’s autopsy did not reveal an explanation, but...